“It is to a big extent an invisible thing, I do tend to look ok unless you see me with a walker. People find it quite hard to imagine the degree of pain that I'm in because I try to put a brave face on. I think sometimes if you've got a disability you feel like you have to work extra hard to be acceptable.”
Ehlers-Danlos syndrome
Here Marie talks about her life experiences and the impact of prejudice on her life as someone who suffers from Ehlers-Danlos syndrome (EDS). She talks about going for most of her young and adult life not knowing that she had EDS, which resulted in a decrease of confidence and performance at school.
Ehlers-Danlos syndrome (EDS) is a disease that weakens the connective tissues of your body. These are things like tendons and ligaments that hold parts of your body together. EDS can make your joints loose and your skin thin and easily bruised. It also can weaken blood vessels and organs.
To find out more about EDS follow these links:
https://www.ehlers-danlos.org/what-is-eds/
https://patient.info/bones-joints-muscles/ehlers-danlos-syndrome-leaflet
